Be a Warrior! Help us Fight DIPG!
Be a Warrior! Help us Fight DIPG!
Thank you so much to Canadian Nuclear Laboratories! We were one of the charities that received a donation from Canadian National Energy Alliance (CNEA) through CNL staff in recognition of CNL’s performance over the previous year Thanks to all who participated in this initiative, and for being such an active supporter of your communities!
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We are humbled and proud to be able to announce this years donation! We will be continuing to support Oren J. Becher MD at Mount Sinai Kravis Children’s Hospital. Dr. Becher is the Chief of the Jack Martin Division of Pediatric Hematology-Oncology, the Steven Ravitch Chair in Pediatric Hematology, and Professor of Pediatrics…
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https://www.mountsinai.org/about/newsroom/2022/leading-experts-unveil-the-mount-sinai-childrens-brain-and-spinal-tumor-center https://icahn.mssm.edu/research/cbstc
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The following link is an update on Dr. Oren Becher’s move from Northwestern University School of Medicine to Mount Sinai. https://www.mountsinai.org/about/newsroom/2021/childhood-brain-tumor-expert-named-chief-of-pediatric-hematology-oncology-at-mount-sinai-kravis-childrens-hospital
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As a parent, we celebrate milestones. First time rolling over, walking, and words when very young. Then we enter into drivers licences, exams, and first kisses. A big milestone is the graduation of high school. We anticipate it, we grow nervous about it, we celebrate it. This past June, Valin completed high school….
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No parent should have to think of their children associated with death. No parent should have to “visit” their child at the cemetery. No parent should have to wake up every day knowing there is one less sing-song good morning heard. Yet here we are. Here are thousands of parents throughout the world…
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8 years down this desolate road. The road of loss, and sadness. The road of pretending and hiding. The road walked by many, yet feeling alone on the path. The road we navigate at diagnosis. Although it has been 8 years, this day remains fresh in my mind. The dread. The fear….
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The 2021 Superhero Run was again a virtual event. Still successful and tons of support we are happy to have been able to put it on. This is the 7th year we are having this event (2nd virtual due to Covid), but we are so grateful for the community of supporters we have…
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This day comes every year, and every year I dread it. I cannot change it. I cannot erase it. I cannot accept it. It will always be with me, with us. Today is not an anniversary. It is not a day of laughter. It is not a day of happy memories. It is…
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Happy birthday baby boy. You should be 16 years old this year. I don’t even know what to say. Leading up to your birthday I felt broken. How can I not? The forever contemplation of what you would look like, how tall you would be, if you would be driving, who you were…
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Many parents go through PTSD after their child has been diagnosed with cancer, and definitely after their child has died. I have written about that in previous blogs. Many don’t fathom the extent of that trauma for parents. Speaking to people, some have questioned if there’s a trigger, or a single moment…
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Another year Another year that will not know Madox and his energy Another year we will not create new memories with or of Madox Another year we will wonder who Madox would have been Another year of worry, that memories of the past will be forgotten Another year of hoping Valin always…
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