Be a Warrior! Help us Fight DIPG!
This day comes every year, and every year I dread it. I cannot change it. I cannot erase it. I cannot accept it. It will always be with me, with us. Today is not an anniversary. It is not a day of laughter. It is not a day of happy memories. It is…
Read MoreJournal entry August 1, 2014 Madox had an okay night. His breathing is sounding wet while he sleeps and he is now snoring which is new for him. I listened to his chest yesterday and he has significant decreases to his left lobe throughout. This could be why he has…
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