Be a Warrior! Help us Fight DIPG!
Marco and I had a discussion the other night. Not really sure what brought up the topic, but it weighed heavy on our hearts. “I’m worried Valin will begin to forget Madox,” Marco shared while we were cleaning the kitchen. I have been thinking about this for weeks but haven’t discussed…
Read MoreWednesday, August 6, 2014 Another terrible night. Woke at 12:30am and never really got back to sleep. Started off with lots of pain to his left side and back, then the gurgle chest started. All three of us were sleeping in the living room with Madox on the hospital bed, so…
Read MoreTuesday, August 5, 2014 Madox did not sleep well overnight. I massaged almost every body part because he ached all over. Even his cheeks and temples hurt because he is so puffy and the skin is so taut. I took him downstairs and he started having a panic attack. Gawd…
Read More2 years ago today, on August 7, 2014. Excerpt from my journal: Madox had a terrible night. He woke up at 12:30am and didn’t ever get back to sleep. It started off with lots of pain, then a very gurgled chest. I kept suctioning him but it was just too…
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