Be a Warrior! Help us Fight DIPG!
Be a Warrior! Help us Fight DIPG!
8 years down this desolate road. The road of loss, and sadness. The road of pretending and hiding. The road walked by many, yet feeling alone on the path. The road we navigate at diagnosis. Although it has been 8 years, this day remains fresh in my mind. The dread. The fear….
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5 years today. 5 years ago today we heard those words no parent wants to hear. 5 years ago we met a murderer, and it was attacking our son. No length of time will soften the hurt. We will forever remember that day, that specific moment. That walk down the bright hospital hallway….
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today. today is the first day that changed our lives. the day I felt a fear I never knew I could feel. the day I felt helpless. the day I felt the world was against us. the day I hated everything and everyone on the planet. …
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I believe our body is conscious of pains and memories before our brain tells us these flashbacks are coming. I can feel a change in my behaviour, mood and sleep when a hard memory approaches. Marco feels it in himself as well, and we can see it in Valin. We all…
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I’ve been told I’m not coping well. I’ve been told it should be easier by now. I’ve been told take some medication so you can learn to live again. I’ve been told so many useless, unhelpful things. Things I never once asked for. But I do have a request. I DON’T want your…
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When Madox was ill, we created a Facebook page called Strength For Madox. It was to allow friends to be up to date with Madox and our lives. I don’t post on that page anymore, as it had gotten too difficult for me emotionally. I poured my heart out on…
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