Be a Warrior! Help us Fight DIPG!
Be a Warrior! Help us Fight DIPG!
8 years down this desolate road. The road of loss, and sadness. The road of pretending and hiding. The road walked by many, yet feeling alone on the path. The road we navigate at diagnosis. Although it has been 8 years, this day remains fresh in my mind. The dread. The fear….
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Tuesday, August 5, 2014 Madox did not sleep well overnight. I massaged almost every body part because he ached all over. Even his cheeks and temples hurt because he is so puffy and the skin is so taut. I took him downstairs and he started having a panic attack. Gawd…
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Today is Madox’s birthday. He should be here celebrating his 11th with us. Our sweet little Madox joined our family early morning on March 30th. He was 3 weeks early, but full of energy. Your dad and I loved you so much as soon as we saw you. We couldn’t take our…
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Gasping…. What do you say about a day that hurts? A day that is burned into memory. A day that took away so much. Gasping… So many mixed emotions. So sad and heartbroken. No new memories to be made as a family of 4. No snuggle up nights while watching a…
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